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Rare Disease Day – February 28, 2023

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

To learn more about Rare Disease Day and ongoing advocacy efforts, explore the links below.

NORD (National Organization for Rare Disorders)

NIH Genetic and Rare Diseases (GARD) Information Center

Tips for the Undiagnosed

Global Genes

Empowering patients, building communities and driving forward momentum for rare disease globally.

Rare University

Genetics concepts for Rare Disease Patients and Families.

Patient Advocate Foundation

Provides case management services and financial aid to Americans with chronic, life threatening and debilitating illnesses.

Genetic Alliance

Rare Disease & Genetic Conditions Support Community.

Genes 101