NORD (National Organization for Rare Disorders)
- Resources for Undiagnosed Patients
- Patient and Caregiver Resource Center
- Educational Videos
- Webinar Series
Tips for the Undiagnosed
- Help with Travel Costs guide
- Financial Aid for Medical Treatment
- Finding reliable health information online
- How to Get Involved in Research
- Clinical Research studies for rare disease
- Patient Registries for rare disease
Empowering patients, building communities and driving forward momentum for rare disease globally.
Genetics concepts for Rare Disease Patients and Families.
Provides case management services and financial aid to Americans with chronic, life threatening and debilitating illnesses.
Rare Disease & Genetic Conditions Support Community.