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NORD (National Organization for Rare Disorders)

NIH Genetic and Rare Diseases (GARD) Information Center

Tips for the Undiagnosed

Global Genes

Empowering patients, building communities and driving forward momentum for rare disease globally.

Rare University

Genetics concepts for Rare Disease Patients and Families.

Patient Advocate Foundation

Provides case management services and financial aid to Americans with chronic, life threatening and debilitating illnesses.

Genetic Alliance

Rare Disease & Genetic Conditions Support Community.

Genes 101